Wednesday, February 11, 2015
Bonnie was a very special person. I used the term "was" because she passed away yesterday after years of suffering with Mitochondrial Disease, a very rare, but deadly disease that robs the body's cells of energy. I took the following paragraph from her CaringBridge page to explain to you how horrible this disease is. There is no cure.
Bonnie endured dozens of surgeries and had hospital admissions as long as seven and 11 months at a time (she celebrated multiple birthdays and holidays while an inpatient). She had a pacemaker and an implanted double vascular port and required daily IV medications and fluid, oxygen therapy, and lab draws several times a week. She delayed motility problems and gastroperesis, and she had her gall bladder, spleen, thymus, and colon removed (prior to which to she had a loop ileostomy). This disease affected every organ system in her body and caused adrenal failure, polycystic ovarian disease, and kidney and autonomic problems as well. Because of her severely impaired immunity, she required IVIG therapy every three weeks to help her fight infections, which often become life-threatening. Bonnie was unable to walk for years due to profound muscle weakness and was bed-bound, but used an electric wheelchair when she needed to be transported places. She also had chronic GI bleeding and required blood transfusions every three to five weeks. Her parents were her caregivers; her mother and father are saints.
Despite her disabilities, Bonnie loved reading beauty blogs, entering contests, and writing. I was blown away when I received long, handwritten letters from her, letters I would not have had the energy to write. She was beyond special.
Always optimistic, she wrote in December, "I have a fluid collection in my abdomen that needs to be drained. It has been drained before, and it filled up again, and that will likely keep happening unless it is removed surgically. Unfortunately the pathology sample got lost last time it was drained, so the doctor wanted to try again and hopefully not lose the sample this time. I would so appreciate your prayers, they mean a lot to me and definitely make a difference! :-) Even after all the surgeries and procedures I've had, I still get a bit nervous, and contrary to the popular saying, it doesn't get easier the more I do it, I actually think it gets a little harder since I KNOW how much it hurts to have my abdomen stabbed with a huge needle (I've already been *not* enjoying daily lovenox injections, since I have to be off my coumadin for several days before and after the procedure)."
Her courage was unparalleled. Unfortunately, she developed sepsis one last time and lost her battle with this cruel disease. She asked the doctors to let her rest a few days, optimistic that rest would help her fight the infections raging in her body. They sedated her, and she rested. Her mother posted the following announcement on Facebook less than 24 hours ago, and I have cried since I saw it.
Bonnie has fought the good fight, but her Mitochondrial Disease had taken so much from her body's ability to fend off the sepsis. She passed peacefully with her family all around her earlier this afternoon. We are heartbroken, but we know she is finally free from the constant pain and is dancing with the Lord in heaven. We will be arranging a service to celebrate her and her ministry to so many.
I send my deep and heartfelt sympathy to her family - and to the many friends she made at CaringBridge, among her medical teams, on the Internet, and locally in her home state. Bonnie was a very special person.
Photos courtesy of her friends on her Facebook page
Monday, January 12, 2015
Amal Clooney (above) has impeccable taste - and a finely tuned sense of what's appropriate when your husband is receiving the highest honor of the night. She looked beautiful in her Dior Haute Couture, but by choosing black, she left the spotlight to him. The gloves? I could take or leave them, but I do admire her intelligent choice. On a night when you have to shake hands with many people, why not protect your health with gloves?
There were many other celebrities whose looks were stunning, many who were just so-so, and too many misses. I can't show them all; it would take all day. So, feel free to add your own reviews in the comments. Who do you think looked great, and who should have changed before they left home?
Photos courtesy of WWD
Wednesday, December 31, 2014
Wednesday, December 24, 2014
Last night, I gave Charlie and Savvy extra food. That seems to be their favorite treat. Charlie also got his first pill for hyperthyroidism. It will be temporary until I can get it nuked, the state-of-the-art treatment. I will be leaving the morning meal for the foxes and raccoons, birds and squirrels - early enough for all of them to enjoy it.
On Christmas Eve, I ran my butt all over the place. 1) Pick up Charlie's pills at the vet. 2) Pick up the prime rib roast at the Organic Butcher in McLean. 3) Drive to DC to Wagshal's to get the sides. 4) Go back to McLean to Balducci's for potato latkes and au gratin potatoes. Also got brie and crackers. Then went to the wild bird store for cracked corn for Mom's deer family. Delivered a few gifts. I am exhausted.
I was supposed to be off my feet today, but what are you going to do? I got a shot of cortisone in my right knee (and right shoulder). I was supposed to take it easy. Sure!
I'll be headed to Mom's to make Christmas dinner. She "ordered" standing rib roast. That's easy to cook. We're also having macaroni and cheese and cheesy corn grits (by popular request - no Southerners here!), two kinds of potatoes (at my instigation), French green bean casserole (yes the one with the crispy French's onions - we love it), and an Italian rum cake I purchased at the bakery. Also, plenty of wine, beer, and French soft cheese. It's going to be a delicious day.
I hope you have a wonderful Christmas! Please stop by later to let us know how you celebrated. I still have to write up my beauty events from last weekend. I'll try to get that done this weekend after all the festivities.
If you'd like to go off to YouTube to hear one of my all time favorite Christmas carols sung by Barbara Padilla, check out this link. Incredibly hard to sing - hard to believe I used to be able sing it. I'll never forget that this song brought tears to my father's eyes - that and Ave Maria. Remembering that brings tears to mine.
It will be a happy day!
Thursday, December 18, 2014
Special Event Saturday at Le Métier de Beauté, Mazza Galleriem with Hylton Lea, Global Director of Skincare
Hylton has a deep understanding of the advanced science behind the Le Métier de Beauté skin care. As the Global Director of Skincare, he serves as the brand’s Skincare Ambassador and Spokesperson. Constantly in the field, he has the unique opportunity to educate and interact with Le Métier de Beauté's customers. Combining his experience with the unmatched technological capabilities of Le Métier de Beauté, a perfect match has been achieved. Le Métier de Beauté will be delivering new, never-before-seen products that will help all of us achieve real results, and Hylton will show us how.
Hylton's boundless energy and intense passion for the brand and skin care is infectious. From assisting in the development of ground-breaking, highly scientific formulations, to the execution of strategic client and brand initiatives, his unending enthusiasm and positive, upbeat client interactions are becoming integral components of the Le Métier de Beauté brand experience. Hylton was a brilliant "hire." I'm thrilled that he has joined the Le Métier de Beauté team.
Prior to joining Le Métier de Beauté, Hylton was the Senior Vice President Communications and Business Development at RéVive (where I met him) and led sales development initiatives for luxury brands, including Erno Laszlo, Bliss, and Boucheron. Additionally, he served as Cosmetics Manager at the Neiman Marcus in Beverly Hills, California.
You can just drop in, but I'd suggest you make an appointment to see Hylton. I did. Call Michael Reinhardt at (202) 966-9700, extension 2258. That way, you will enjoy Hylton's undivided attention. I'm excited!
Photo courtesy of Le Métier de Beauté
Wednesday, October 29, 2014
If you live near there, can you help in the search? Or send this notice to friends who might be nearby? Drew can be reached at the number above, (504) 388-3834.
Buster is wearing a black collar with red rhinestones. He was last seen by a neighbor on Clark Court. He lives on Florida Court.
I can't help search, but I can put out a broadcast to thousands of people. Thanks! We animal lovers stick together.
Update: Buster was picked up a nice lady, who saw him running on Johnston St. She kept him for the night and had to go to work, so she put him in a friend's yard in the Saint Streets while she was waiting for Animal Control to open so she could call him with his tag number. (And yes, I know how utterly stupid we were not to have a tag on him with our name and number or to have him chipped.). He escaped from the yard an hour after she put him in it. So, please share and communicate with your friends in the Saints Street area.
Update November 7: I am despondent to tell you that Buster is still missing. No known sightings since the first. Not looking good.
Saturday, October 25, 2014
My recovery went well for two weeks. Then, unfortunately, I fell. I was being careful, but my desk chair, which swivels, did not support me. I really hurt my knee, and I sprained my back. I saw the PA the next day because my surgeon was out of town. She took x-rays and found nothing wrong with me. My physical therapist thinks I just sprained an already aggravated knee.
I live at home in bed with my PolarCare machine, which pumps ice up the tube you can see above and into the flat pieces that strap around my knee with Velcro. My sweet friend has kept me in ice, so I am not swollen (much).
Had I not fallen, I think I'd be well on my way to full mobility. I want to kick myself, but it would hurt.
I haven't been terribly active with the world of beauty, although I have purchased a few holiday pieces from Chantecaille and Chanel. I purchased a new Le Métier de Beauté Kaleidoscope designed by Michael Reinhardt. I also ordered that one-day-only lipstick from Giorgio Armani Beauty yesterday. I don't know when I will be able to start taking pictures again. That requires sitting on the ground in my driveway, and if I get down, I'm not sure how I'll get back up.
I wanted you to know that I'm alive, if not kicking. I appreciate the notes some of you have sent me. Thank you. I probably won't be able to respond to comments, but please know I appreciate your well wishes.
The good news? Charlie doesn't leave my side. I think he knows I'm not "well." I'm enjoying his company.
Miss you all!
Photo courtesy of sportshealth.com